Tag: Intersex

The realities of being Intersex

What many don’t people realize and don’t understand is that being born with an Intersex condition is not easy as everyone thinks or sounds. People paint a picture of what an intersex person looks like and what their genitals looks like in their mind. Even people in the LGBT community often times paints a rosy picture of what life is like for an Intersex person. The reality is, that it’s not easy being an intersex person and it sure ain’t easy having to deal with your Intersex condition. Many people think that it’s easy for someone to be intersex, but the sad reality is that many intersex person including myself have medical and social issues that go FAR deeper than your run of the mill LGBT or even in normal society. Our issues go right to our genetics, DNA, physiology and biology.

Many people don’t realize that being born with an intersex condition, you have issues that no one in a normal society would not understand. No one wouldn’t know what it’s like to be intersex and how intersex people face and deal with society. Many of the trivial issues that society faces, often times, are the hardest issues that Intersex people face such as relationships, sex and reproduction. In my case, because I have Kallmann’s syndrome. My issues I face as an intersex person with Kallmann’s syndrome are biological sex, relationships with people and my prospect for reproducing, if I am ever in a relationship with someone. These are the things I face that no normal person would ever want to deal with or go near. It’s something I deal with on a daily basis.

For example, when it comes to relationships such as girlfriends or friends in general. It’s the one area that’s always the hardest for me. That’s with my Intersex condition, I always look 10 yrs younger than my age and being that I’m 39 yrs. Old. I’m often times told by people and especially women, that I look more like a 23 to18 year old instead of a 39-year-old. When I tell them my true age, they are often times very shocked at how young looking I am. They often comment how I don’t look 39 years old and how at first sight they thought I was 18 or even 23 years old. When it comes to having a girlfriend or even friends. That often times get’s very tricky because of the fact that I look younger than my age and I’m not taken very seriously as a person. Many times I have tried dating but often times stopped because of the fact that many women don’t see me as a person or that they see me as being way too young looking for them. Which often times leaves me being single and to this day, I’m still single. When it comes to friends, that all depends on what kind of friends I have, such as college friends or social friends. Socially, I don’t have many friends, but on college campus, I have some friends and not many of them. Which often times leave me being by myself and doing things by myself.

As far as sex is concern that’s a huge issue for me because I hadn’t had a girlfriend to face this issue and if I did, the issue of my physical anatomy would be a huge issue. For one, having Kallmann’s syndrome, I have a micropenis and ambiguous genitalia. Having a healthy sexual relationship is a huge issue intersex people including myself because of the fact that many sexual genitals of Intersex people are not normal. The fact that intersex people have genitals that are not normal. Having sex and having a normal, healthy sexual relationship is a HUGE issue for Intersex people. That’s why sexual relationships and sexual health is a huge issue for intersex people including myself as well.

When it comes to medical issues, that’s one thing people don’t see. What people don’t see and realize is that many intersex issues have medical issues that can harm them and often times be life threatening for them. Many medical issues that Intersex people face often times revolve around medical issues and reproduction issues. Medical issues such as osteoporosis, heart condition, hormonal issues to even genital and bone health issues. Many of the issues that no sane person would never want to deal with but for me as an intersex person with Kallmann’s syndrome. I have to face those on a daily basis. The issues I face is the fact that I can’t smell. I have massive bone health issues, which would put me at risk for osteoporosis. To even hormonal issues that affect my entire body and reproductive systems. It’s issues that no normal person would never want, but I am stuck with them and I have to deal with for the rest of my life.

It’s why when many people think it’s easy being born with an intersex condition or being intersex. What many people don’t realize is that, it ain’t easy being born with an intersex condition. My issues I have listed are something that no normal person would never want to face or deal with. They wouldn’t want to deal with what I have because some of what I have would hurt them in the long run. My issues and health concerns are something that no one in their right mind would ever want. In my case I am born into it and I have not choice but to face and deal with the fact that I am an intersex person who has Kallmann’s syndrome and have to deal with the fact that I have a micropenis, ambiguous genitalia, being sterile from birth to death, not having the chance of reproducing and not having a normal life like everyone else. If people think it’s easy being intersex, I’ll be glad to let people try my medical condition and deal with the issues I face on a daily basis. Then come back and tell me if it’s easy.

 

 

Rare Disease day

Today is Rare Disease day and I want to take this moment to let people know that as someone who has Kallmann’s syndrome and is born with an Intersex/DSD condition. I’m supporting Rare Disease day 2016 and bringing to light the fact that people like me who are Intersex/DSD have a Rare disease. I have a Rare Disease call Kallmann’s Syndrome and I’m living proof that I am surviving and thriving with my Rare Disease.

I’m living proof that I can live very comfortably with my rare disease and even thrive in it. Being an Intersex/DSD person and having a rare disease call Kallmann’s syndrome is proof that I never let me rare disease bring me down. I never let my rare disease be a handicap and instead it empowers me and often times inspires me to be myself and do great things. What’s nice about that is, i’m going to be one of the very few people who have a Rare disease and an Intersex/DSD condition graduate from college with a Bachelors degree in May. That’s an accomplishment and an achievement in itself.

So today, please thank those who are celebrating Rare Disease day 2016 and thank those who have a Rare Disease and are alive today. I’m thankful that I am living proof that I can survive and thrive with my rare disease and live to tell about it. So today is a day that people like me who have a Rare Disease can celebrate it and talk about it.